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jinx · 11-17-2009, 07:07 PM

Spence's right hand had just about every bone deformity you probable never heard of... contractures, deltaphalages camptodactyly, repaired polydactyly, etc etc I forget what else. The fingers of his left hand were just all fused together.
When he was born the doctors were all "no idea why, luck of the draw", and he had surgery to repair what they could. Then ippy came along with 3 major and 1 minor contractures. Todays xrays showed that her affected joints look the same as spencer's affected joints.

Genetics were mentioned but no one in either of our families had these issues that anyone can remember.

So basically the kids have fingers that have very little range of motion. Like 55-150 degrees instead of 0 to 180 (and spence has one that doesnt move at all). Today the surgeon said he could change the range of motion but not likely increase it, and complications from surgery could actually reduce it. Neither kid is interested at this point.

11-17-2009, 07:07 PM	#4864
jinx Come on, cat. Join Date: Nov 2003 Location: general vicinity of Philadelphia area Posts: 7,013	Spence's right hand had just about every bone deformity you probable never heard of... contractures, deltaphalages camptodactyly, repaired polydactyly, etc etc I forget what else. The fingers of his left hand were just all fused together. When he was born the doctors were all "no idea why, luck of the draw", and he had surgery to repair what they could. Then ippy came along with 3 major and 1 minor contractures. Todays xrays showed that her affected joints look the same as spencer's affected joints. Genetics were mentioned but no one in either of our families had these issues that anyone can remember. So basically the kids have fingers that have very little range of motion. Like 55-150 degrees instead of 0 to 180 (and spence has one that doesnt move at all). Today the surgeon said he could change the range of motion but not likely increase it, and complications from surgery could actually reduce it. Neither kid is interested at this point. __________________ Crying won't help you, praying won't do you no good.