Thread: Crohn's surgery
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Old 07-06-2011, 09:03 AM   #11
Pete Zicato
Turns out my CRS is a symptom of TMB.
 
Join Date: Jan 2010
Location: Chicago suburbs
Posts: 2,916
I went to see the gastro yesterday 'cause I'm still feeling like crap - cramps, nausea, general abdominal pain. And he's finally willing to admit that I should be feeling better by now. He's been waiting to see if it was just post-surgery healing.

So now he figures it's one of two things:

A) The surgeon didn't get all the active Crohn's disease.

B) I have bile acid diarrhea.

There's a valve between the small intestine and the large intestine which got removed when they did the surgery. (I didn't realize I had one nor that they took it out) When they remove your ileocecal valve, some people start having the bile acid diarrhea.

So I had blood drawn yesterday to see if I've got active inflammation with further testing possible once that comes back.

I really don't know which to hope for. At least they're starting to work on the issue now.
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