Quote:
'The Trust decided not to obtain Kalydeco on a compassionate basis because the drug company named patient scheme for free Kalydeco is temporary and the Trust would face withdrawing the medication when the scheme stops, which would be unethical.
'We have approached our commissioners to apply for funding and are putting together an exception application to the Primary Care Trust.
'As soon as we receive an update on our application for funding and the special exception application to the Primary Care Trust, we will share this with our patients and their families.'
A spokesman for NHS Birmingham and Solihull said: 'We are unable to discuss individual cases. However, we can confirm that to date we have not received a formal request for this drug.
'Any request we receive will be considered in line with guidance that has recently been received from Midlands and East Specialised Commissioning Group.'
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But more importantly:
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She could benefit from new drug Kalydeco, which normally costs £182,000 a year - money that the cash-strapped NHS are unable to afford due to swingeing cuts.
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Swingeing cuts made by a conservative led government, obsessed with using austerity measures, slashing public service budgets and cutting taxes.
The National health Service would do just fine if right-wing governments would stop slashing budgets, and driving foward the privatisation of care. Look anywhere in the country and the problems in healthcare are a direct result of moving towards a Health Trust system, whereby local areas are responsible for their own health budgets (ramping up costs as an additional layer of management was added in order to manage the trusts), housed in PFI hospitals which end up costing the taxpayer three times more than a similar building built with public funds, which we would then own in perpetuity.
It pisses me off it really does. The Right in this country are constantly doing down public services, whether the NHS or schools, or transport. Anything still in public hands gets stripped back and 'streamlined' and made to function as near to a free market as possible, and then when the system no longer functions properly they say: ah well, what can you expect with socialised medicine?
The pronblems with the NHS aren't because it's a socialised system, the problems are because it is becoming so much less of a socialised system. Opening it up to profit on the one hand and slashing budgets on the other is what is breaking the system.