|
Recurring IV treatments are an option, but obviously not preferable for a 7-year-old. There is also the issue of getting insurance coverage for them, because it can be proven that what he has is definitively not Crohn's. It's a mostly undescribed thing which only barely exists in the medical literature--at least without Andrew Wakefield's name attached--as of early this year. Insurance may not want to pay $20,000 a year for "unspecified enterocolitis," until enough studies have proven that it responds to the drugs the same as other autoimmune conditions.
We were actually on a path to getting him covered for generic IVIG a couple years ago, but then the only local clinic that would do it based on an outside doctor's prescription stopped offering it. You have to get their internal doctor to order it, and the internal doctors know nothing about autism.
|