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Old 10-19-2012, 02:55 PM   #93
orthodoc
Not Suspicious, Merely Canadian
 
Join Date: Oct 2006
Posts: 3,772
Not to tell you that you'd go right into menopause - that's bad. And the other stuff, really bad. I don't know what these people are thinking. I still think that giving people an outline of what to expect is crucial. My line of work isn't oncology but it involves helping people through injuries and exposures of various types. Telling someone what to expect is central, and I find people do better (no surprise - information is golden) when they understand the usual course, what's common, what's uncommon but may happen, and what's an emergency. Then, too, if things go better than anticipated (it happens), people are extremely happy because they understood the whole process.

I was given a booklet with a calendar and a couple pages listing side effects. There are columns giving an idea of when a side effect becomes an emergency, but nothing about timing and the onco didn't go over it. Maybe it's because I'm a medical person, but I have no practical experience with chemo. I can read articles but I don't know the practical details of timing and little tips that help.

And yes, I also feel constrained and dependent on this team. Overall I'm okay with them so far, but I don't really have other choices due to insurance and job requirements. I get frustrated when I read books by obviously extremely well to do people who insist that everyone should flit around the country visiting the top 5 cancer institutes before deciding on care. That's not reality.
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