How I spent the weekend - corneal/epithelial erosion

dar512 · 11-24-2009, 01:07 PM

Some folks say that God only gives you trials you can handle. If that's true, then God thinks I'm a friggen hero. Not one, but two incurable illnesses. In addition to having Crohn's disease, I also have Cogan's dystrophy - also known as Map Dot Fingerprint dystrophy (for what the cornea ends up looking like).

Descriptions of Cogan's say, "In some cases, epithelial erosion may occur. Epithelial erosion can expose the nerves lining the cornea, causing severe pain."

Let me tell you "severe pain" does not cover it.

I know I'm whining. Neither of these diseases is likely to kill me. Though for both diseases doctors have told me, "There will be times when you might wish it would."

classicman · 11-24-2009, 01:11 PM

Ouch - sorry Dar. Hope the pain subsides for you.

glatt · 11-24-2009, 01:11 PM

Wow Dar. I'm really sorry. So now that the weekend is over, does that mean you are feeling better?

Spexxvet · 11-24-2009, 01:13 PM

Sorry, Dar. Try to score some medicinal marijuana for the pain.

DanaC · 11-24-2009, 01:24 PM

God Dar, that's horrible.

dar512 · 11-24-2009, 01:28 PM

Saturday was the day of "get these f*** razorblades out of my eyeball". God bless modern medicine.

Today is still no fun, but doable. Major sensitivity to light and a minor burning sensation is all.

nowhereman · 11-24-2009, 01:37 PM

I'm not Bill Clinton, but "I feel your pain". I've had recurrent erosions for about 10 years. The only thing I can do is use opthalmic ointment every night in that eye. Not too much though, or I'll be looking through a hazy windshield the next day. Probably should get to a really good ophthmologist and check into any laser fixes. It's NOT fun...

skysidhe · 11-24-2009, 05:44 PM

Quote:

Originally Posted by dar512

Some folks say that God only gives you trials you can handle. If that's true, then God thinks I'm a friggen hero. Not one, but two incurable illnesses. In addition to having Crohn's disease, I also have Cogan's dystrophy - also known as Map Dot Fingerprint dystrophy (for what the cornea ends up looking like).

Descriptions of Cogan's say, "In some cases, epithelial erosion may occur. Epithelial erosion can expose the nerves lining the cornea, causing severe pain."

Let me tell you "severe pain" does not cover it.

I know I'm whining. Neither of these diseases is likely to kill me. Though for both diseases doctors have told me, "There will be times when you might wish it would."

Did the Dr. give you anything to relieve the pain in your eye?

My sister has a nerve dystrophy so I understand how painful this could become.

Is the Epithelial erosion far advanced? or was that the Dr's prognosis that it will in fact erode that far? or has it?

I suppose asking so many questions isn't going to help much but I do have heartfelt sympathy for it.

monster · 11-24-2009, 05:50 PM

ouch

will it affect your vision? I hear there's a lot of money being put into Crohn's research, I hope they come up with something that helps.

dar512 · 11-24-2009, 07:46 PM

Quote:

Originally Posted by skysidhe

Did the Dr. give you anything to relieve the pain in your eye?

My sister has a nerve dystrophy so I understand how painful this could become.

Is the Epithelial erosion far advanced? or was that the Dr's prognosis that it will in fact erode that far? or has it?

I suppose asking so many questions isn't going to help much but I do have heartfelt sympathy for it.

In Cogan's dystrophy, the bottom layer of epithelium cells are thick and uneven. This means all the layers above don't attach properly. When it goes, everything above tears off in hunks. The doctor I saw in the ER recommends a corneal scrape. This does not sound like a whole lotta fun. We'll see what the regular specialist says next week.

dar512 · 11-24-2009, 07:48 PM

Quote:

Originally Posted by monster

ouch

will it affect your vision?

It has somewhat, but I think the corneal scrape is supposed to help with that. I'll ask the corneal specialist next week.

Cicero · 11-25-2009, 01:18 AM

The corneal scrape? Ow! Even I'm flinching. ow....

xoxoxoBruce · 11-25-2009, 02:46 AM

There's a woman doing her residency at Will's Eye in Philly, that writes a column in the Inquirer. The shit they are doing with eyes is fucking awesome. Most of the columns I read cause me to squirm, like when I listened to the description of Ronald Reagan's catheterization.

Griff · 11-25-2009, 05:56 AM

It sounds terrible dar, sorry.

skysidhe · 11-25-2009, 07:33 AM

I've got my fingers crossed for you dar

11-24-2009, 01:07 PM	#1
dar512 dar512 is now Pete Zicato Join Date: May 2003 Location: Chicago suburb Posts: 4,968	How I spent the weekend - corneal/epithelial erosion Some folks say that God only gives you trials you can handle. If that's true, then God thinks I'm a friggen hero. Not one, but two incurable illnesses. In addition to having Crohn's disease, I also have Cogan's dystrophy - also known as Map Dot Fingerprint dystrophy (for what the cornea ends up looking like). Descriptions of Cogan's say, "In some cases, epithelial erosion may occur. Epithelial erosion can expose the nerves lining the cornea, causing severe pain." Let me tell you "severe pain" does not cover it. I know I'm whining. Neither of these diseases is likely to kill me. Though for both diseases doctors have told me, "There will be times when you might wish it would." __________________ "Against stupidity the gods themselves contend in vain." -- Friedrich Schiller

11-24-2009, 01:11 PM	#2
classicman barely disguised asshole, keeper of all that is holy. Join Date: Nov 2007 Posts: 23,401	Ouch - sorry Dar. Hope the pain subsides for you. __________________ "like strapping a pillow on a bull in a china shop" Bullitt

11-24-2009, 01:13 PM	#4
Spexxvet Makes some feel uncomfortable Join Date: Dec 2005 Posts: 10,346	Sorry, Dar. Try to score some medicinal marijuana for the pain. __________________ "I'm certainly free, nay compelled, to spread the gospel of Spex. " - xoxoxoBruce

11-24-2009, 01:28 PM	#6
dar512 dar512 is now Pete Zicato Join Date: May 2003 Location: Chicago suburb Posts: 4,968	Saturday was the day of "get these f*** razorblades out of my eyeball". God bless modern medicine. Today is still no fun, but doable. Major sensitivity to light and a minor burning sensation is all. __________________ "Against stupidity the gods themselves contend in vain." -- Friedrich Schiller

11-24-2009, 05:50 PM	#9
monster I hear them call the tide Join Date: Dec 2005 Location: Perpetual Chaos Posts: 30,852	ouch will it affect your vision? I hear there's a lot of money being put into Crohn's research, I hope they come up with something that helps. __________________ The most difficult thing is the decision to act, the rest is merely tenacity Amelia Earhart

11-24-2009, 01:11 PM	#3
glatt ™ Join Date: Jul 2003 Location: Arlington, VA Posts: 27,717	Wow Dar. I'm really sorry. So now that the weekend is over, does that mean you are feeling better?

11-24-2009, 01:37 PM	#7
nowhereman sliding down the razor blade of life Join Date: Jan 2007 Location: just over the edge Posts: 228	I'm not Bill Clinton, but "I feel your pain". I've had recurrent erosions for about 10 years. The only thing I can do is use opthalmic ointment every night in that eye. Not too much though, or I'll be looking through a hazy windshield the next day. Probably should get to a really good ophthmologist and check into any laser fixes. It's NOT fun...

11-25-2009, 01:18 AM	#12
Cicero Looking forward to open mic night. Join Date: Oct 2006 Location: New Mexico Posts: 5,148	The corneal scrape? Ow! Even I'm flinching. ow.... __________________ Show me a sane man, and I will cure him for you.- Carl Jung

11-25-2009, 02:46 AM	#13
xoxoxoBruce The future is unwritten Join Date: Oct 2002 Posts: 71,105	There's a woman doing her residency at Will's Eye in Philly, that writes a column in the Inquirer. The shit they are doing with eyes is fucking awesome. Most of the columns I read cause me to squirm, like when I listened to the description of Ronald Reagan's catheterization. __________________ The descent of man ~ Nixon, Friedman, Reagan, Trump.

11-25-2009, 05:56 AM	#14
Griff still says videotape Join Date: Feb 2001 Posts: 26,813	It sounds terrible dar, sorry. __________________ If you would only recognize that life is hard, things would be so much easier for you. - Louis D. Brandeis

11-25-2009, 07:33 AM	#15
skysidhe ~~Life is either a daring adventure or nothing.~~ Join Date: Apr 2006 Posts: 6,828	I've got my fingers crossed for you dar

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