Any Decent Pain Groups?

[TheMercenary]

"I have a very rare (there is no name for it, I may be the only one) genetic degenerative bone/hormone/connective tissue/nerve disease that I was born with. Different aspects are being diagnosed constantly.
The best way to think of it, as the individual symptoms were diagnosed through my life from about 13 on; it is like having osteoporosis, arthritis, facets (spine collapsing on largest nerves), compressed/fractured/slipped/herniated discs, immune deficiency, & tendonitis all at the same time.
I have a birth defect of my lower spine, spinal cord and epidural space that encourages a lot of these problems.
My spine is 1/2 the size it should be on the bottom half and I have almost no epidural space.
Due to the spinal issues, arthritis and connective tissue problems I am very sensitive to weather/barometer changes.
The illness has recently been affecting my liver & kidneys, there are varying theories as to why, I don't really discuss that very much.
There is no cure and they cannot slow it down, though they have been trying.
The surgeries that I have had are many, removing parts of my spine, work on my sciatic nerve & have implanted a pacemaker into my back with leads that go into my spine to send electric shocks to confuses a percentage of the pain signal to my brain (only from my legs, but better than none at all).
I do, however, have more blessings than curses in my life.
This pain, though constant and somewhat extreme, is nothing compared to what I see people do to themselves and to each other.
I have a loving family, shelter and food; I did not always have any or all of these things at times in my life.
I am rich and loved beyond my wildest dreams, we all have our stuff and I would not trade my with another's; waste no pity on me.
Namaste'
Robert "

I understand better. Namaste to you.