Crohn's surgery - Page 3

BrianR · 05-06-2011, 12:00 AM

I'm sort of in the same boat Pete. I'm taking Vitamin D right now to see if it helps. If it doesn't, I will be getting shots of that along with the B. My endo is waiting for my bloodwork to settle down a little more before beginning that. It seems my malabsorption is just as bad but hasn't been treated for years, which mostly explains why I can barely remember my name these days.

Glad to hear you're on the mend!

Pam

Spexxvet · 05-06-2011, 08:15 AM

Get well soon, Pete

Clodfobble · 05-06-2011, 09:00 AM

How's the post-surgery recovery going? Hope you're feeling better.

Tulip · 05-06-2011, 11:20 AM

Geez, I'm always late to a thread. I hope you're recuperating well, Pete!

Griff · 05-07-2011, 09:01 PM

Yeah, same here!

wolf · 05-08-2011, 09:56 AM

I would learn to administer the shots ... if really stupid diabetics can do it (and trust me, I met a number of both stupid and crazy diabetics over the years), so can you. Heck, it's got to be easier than mainlining or skin-popping, which even the most trembly-handed, strung-out junkie can do.

You'll have better infection control that way. After fewer than a half-dozen, you'll be shooting up like a pro.

morethanpretty · 05-29-2011, 08:44 PM

Can you get the mrs to do it? My sis has to use embrel and I think her hubby does it for her. When my SIL was donating eggs, she had to have shots, my bro would do them for her. Sometimes its easier to let some1 else do it. Or if its not in too private of a spot and one of your kids is old enough/responsible enough...let them do it? They might want to surprisingly, I was always my mom's "nurse" as a kid. It made me feel needed and like I could help out. Being the youngest there usually wasn't a whole lot I could do.

Pete Zicato · 05-30-2011, 10:58 PM

Mrs. Z is even worse about these things than I am. Fortunately, it's only once a month now that I'm through the initial set. We've got a family friend that'll handle those.

On a new note, I'm going in to the office tomorrow for the first time since the surgery. Wish me luck.

morethanpretty · 05-30-2011, 11:18 PM

Quote:

Originally Posted by Pete Zicato

Mrs. Z is even worse about these things than I am. Fortunately, it's only once a month now that I'm through the initial set. We've got a family friend that'll handle those.

On a new note, I'm going in to the office tomorrow for the first time since the surgery. Wish me luck.

What about your kids? Honestly, I can't tell you how much I loved helping my mom during her health issues. It might make them feel better. It sounds like a strange concept giving them that responsibility, but they love you and I'm sure they'll love to help. I do wish you luck! My first 2 days back at work culminating in me hiding in the bathroom and calling in sick the 3rd day. I'm a wimp though.

Pete Zicato · 05-31-2011, 09:28 AM

Quote:

Originally Posted by morethanpretty

What about your kids? Honestly, I can't tell you how much I loved helping my mom during her health issues. It might make them feel better. It sounds like a strange concept giving them that responsibility, but they love you and I'm sure they'll love to help. I do wish you luck! My first 2 days back at work culminating in me hiding in the bathroom and calling in sick the 3rd day. I'm a wimp though.

Actually, I think one or both of the girls might do it after they've seen it done once.

But they're both leaving for college in August, so that'd be a short term thing.

Pete Zicato · 07-06-2011, 09:03 AM

I went to see the gastro yesterday 'cause I'm still feeling like crap - cramps, nausea, general abdominal pain. And he's finally willing to admit that I should be feeling better by now. He's been waiting to see if it was just post-surgery healing.

So now he figures it's one of two things:

A) The surgeon didn't get all the active Crohn's disease.

B) I have bile acid diarrhea.

There's a valve between the small intestine and the large intestine which got removed when they did the surgery. (I didn't realize I had one nor that they took it out) When they remove your ileocecal valve, some people start having the bile acid diarrhea.

So I had blood drawn yesterday to see if I've got active inflammation with further testing possible once that comes back.

I really don't know which to hope for. At least they're starting to work on the issue now.

monster · 05-30-2011, 11:01 PM

hey, i'm bringing a nurse with me tomorrow -let me know if you need her to poke you.....

monster · 05-30-2011, 11:02 PM

(she told me she won't meet strangers off the internet, though ..I'm pretty sure she doesn't believe I've ever done that/intend to

)

infinite monkey · 07-06-2011, 09:05 AM

What are the solutions for either problem? Former: getting opened up again?

Hope it works out really soon, Pete.

Pete Zicato · 07-06-2011, 09:12 AM

It's pretty much drugs one way or the other. For A, it's back on the Crohn's drugs. For B, there's another drug, Questran. Both have quality of life implications.

05-06-2011, 12:00 AM	#1
BrianR Cleverly disguised as a responsible adult Join Date: Jan 2001 Location: Dallas, TX Posts: 3,338	I'm sort of in the same boat Pete. I'm taking Vitamin D right now to see if it helps. If it doesn't, I will be getting shots of that along with the B. My endo is waiting for my bloodwork to settle down a little more before beginning that. It seems my malabsorption is just as bad but hasn't been treated for years, which mostly explains why I can barely remember my name these days. Glad to hear you're on the mend! Pam __________________ Never be afraid to tell the world who you are. -- Anonymous

05-06-2011, 08:15 AM	#2
Spexxvet Makes some feel uncomfortable Join Date: Dec 2005 Posts: 10,346	Get well soon, Pete __________________ "I'm certainly free, nay compelled, to spread the gospel of Spex. " - xoxoxoBruce

05-06-2011, 09:00 AM	#3
Clodfobble UNDER CONDITIONAL MITIGATION Join Date: Mar 2004 Location: Austin, TX Posts: 20,012	How's the post-surgery recovery going? Hope you're feeling better. __________________ My book My other book My spirit animal

05-07-2011, 09:01 PM	#5
Griff still says videotape Join Date: Feb 2001 Posts: 26,813	Yeah, same here! __________________ If you would only recognize that life is hard, things would be so much easier for you. - Louis D. Brandeis

05-08-2011, 09:56 AM	#6
wolf lobber of scimitars Join Date: Jul 2001 Location: Phila Burbs Posts: 20,774	I would learn to administer the shots ... if really stupid diabetics can do it (and trust me, I met a number of both stupid and crazy diabetics over the years), so can you. Heck, it's got to be easier than mainlining or skin-popping, which even the most trembly-handed, strung-out junkie can do. You'll have better infection control that way. After fewer than a half-dozen, you'll be shooting up like a pro. __________________ wolf eht htiw og "Conspiracies are the norm, not the exception." --G. Edward Griffin The Creature from Jekyll Island High Priestess of the Church of the Whale Penis

05-06-2011, 11:20 AM	#4
Tulip Professor Join Date: May 2008 Location: Houston, TX Posts: 1,293	Geez, I'm always late to a thread. I hope you're recuperating well, Pete!

05-29-2011, 08:44 PM	#7
morethanpretty Thats "Miss Zipper Neck" to you. Join Date: Sep 2006 Location: little town (but not the littlest) in texas Posts: 2,957	Can you get the mrs to do it? My sis has to use embrel and I think her hubby does it for her. When my SIL was donating eggs, she had to have shots, my bro would do them for her. Sometimes its easier to let some1 else do it. Or if its not in too private of a spot and one of your kids is old enough/responsible enough...let them do it? They might want to surprisingly, I was always my mom's "nurse" as a kid. It made me feel needed and like I could help out. Being the youngest there usually wasn't a whole lot I could do. __________________ Addicts may suck dick for coke, but love came up with the idea to put a dick in there to begin with. -Jack O'Brien

05-30-2011, 10:58 PM	#8
Pete Zicato Turns out my CRS is a symptom of TMB. Join Date: Jan 2010 Location: Chicago suburbs Posts: 2,916	Mrs. Z is even worse about these things than I am. Fortunately, it's only once a month now that I'm through the initial set. We've got a family friend that'll handle those. On a new note, I'm going in to the office tomorrow for the first time since the surgery. Wish me luck. __________________ Talk nerdy to me.

07-06-2011, 09:03 AM	#11
Pete Zicato Turns out my CRS is a symptom of TMB. Join Date: Jan 2010 Location: Chicago suburbs Posts: 2,916	I went to see the gastro yesterday 'cause I'm still feeling like crap - cramps, nausea, general abdominal pain. And he's finally willing to admit that I should be feeling better by now. He's been waiting to see if it was just post-surgery healing. So now he figures it's one of two things: A) The surgeon didn't get all the active Crohn's disease. B) I have bile acid diarrhea. There's a valve between the small intestine and the large intestine which got removed when they did the surgery. (I didn't realize I had one nor that they took it out) When they remove your ileocecal valve, some people start having the bile acid diarrhea. So I had blood drawn yesterday to see if I've got active inflammation with further testing possible once that comes back. I really don't know which to hope for. At least they're starting to work on the issue now. __________________ Talk nerdy to me.

05-30-2011, 11:01 PM	#12
monster I hear them call the tide Join Date: Dec 2005 Location: Perpetual Chaos Posts: 30,852	hey, i'm bringing a nurse with me tomorrow -let me know if you need her to poke you..... __________________ The most difficult thing is the decision to act, the rest is merely tenacity Amelia Earhart

05-30-2011, 11:02 PM	#13
monster I hear them call the tide Join Date: Dec 2005 Location: Perpetual Chaos Posts: 30,852	(she told me she won't meet strangers off the internet, though ..I'm pretty sure she doesn't believe I've ever done that/intend to ) __________________ The most difficult thing is the decision to act, the rest is merely tenacity Amelia Earhart

07-06-2011, 09:05 AM	#14
infinite monkey Person who doesn't update the user title Join Date: Mar 2011 Posts: 13,002	What are the solutions for either problem? Former: getting opened up again? Hope it works out really soon, Pete.

07-06-2011, 09:12 AM	#15
Pete Zicato Turns out my CRS is a symptom of TMB. Join Date: Jan 2010 Location: Chicago suburbs Posts: 2,916	It's pretty much drugs one way or the other. For A, it's back on the Crohn's drugs. For B, there's another drug, Questran. Both have quality of life implications. __________________ Talk nerdy to me.

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