Any Decent Pain Groups?

09-14-2006, 04:48 PM

My pain levels have been nearly intolerable for some time... I have had to use the chair almost every time we have gone out lately.
My stimulator stays on.
Yesterday the Dr. that deals with most of my meds doubled several of them.
I don't want to begin to think of what this is going to do to my next liver count....
The last x-ray I had looked pretty bad for my upper spine. I get a CT scan now because they want to see just how much faster the bone and connective tissue degeneration is progressing.
I know it should not, but the curiosity aspect to my treatment bothers me... I don't really know why. I think THAT is what bothers me the most. I am usually pretty self aware about this kind of thing.
Been very off-balance since a trip to Sea World where I was treated pretty badly by a lot of people and some of the staff. Like a thing, something to be taken advantage of, to be swept aside, ignored, stepped over, gotten in front of. Not human, not fully. I would say "excuse me" after they got in front of me in line, stepped in front of me before an aquarium, or put their kids in front of my chair and they would just look at me and turn back around. Not worth it. What am I going to do? It was all day, for two days.
Someone assigned to help me get my food at a buffet, walked away from me as soon as her supervisor left... she stood ten feet from me and ignored my calls. A guest went and got my mother-in-law, who helped me as her food got cold... there is more.
I am going to go back... but when? What to do. It has to be before I get worse.
I wonder if anyone is reading this any more? I don't really think it matters.

Griff · 09-14-2006, 05:29 PM

We're still reading man. Your willingness to share is admirable. I don't know if I could write about it, but I'm learning something about your perspective. thank you. g

09-14-2006, 04:48 PM	#1
rkzenrage Guest Posts: n/a	My pain levels have been nearly intolerable for some time... I have had to use the chair almost every time we have gone out lately. My stimulator stays on. Yesterday the Dr. that deals with most of my meds doubled several of them. I don't want to begin to think of what this is going to do to my next liver count.... The last x-ray I had looked pretty bad for my upper spine. I get a CT scan now because they want to see just how much faster the bone and connective tissue degeneration is progressing. I know it should not, but the curiosity aspect to my treatment bothers me... I don't really know why. I think THAT is what bothers me the most. I am usually pretty self aware about this kind of thing. Been very off-balance since a trip to Sea World where I was treated pretty badly by a lot of people and some of the staff. Like a thing, something to be taken advantage of, to be swept aside, ignored, stepped over, gotten in front of. Not human, not fully. I would say "excuse me" after they got in front of me in line, stepped in front of me before an aquarium, or put their kids in front of my chair and they would just look at me and turn back around. Not worth it. What am I going to do? It was all day, for two days. Someone assigned to help me get my food at a buffet, walked away from me as soon as her supervisor left... she stood ten feet from me and ignored my calls. A guest went and got my mother-in-law, who helped me as her food got cold... there is more. I am going to go back... but when? What to do. It has to be before I get worse. I wonder if anyone is reading this any more? I don't really think it matters. Last edited by rkzenrage; 09-14-2006 at 05:34 PM.

09-14-2006, 05:29 PM	#2
Griff still says videotape Join Date: Feb 2001 Posts: 26,813	We're still reading man. Your willingness to share is admirable. I don't know if I could write about it, but I'm learning something about your perspective. thank you. g __________________ If you would only recognize that life is hard, things would be so much easier for you. - Louis D. Brandeis

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