ALS, Lou Gehrig's Disease

footfootfoot · 10-07-2008, 11:55 AM

BigV and Tink,
I am sorry to hear that you are going through this. My wife's dad passed away in 2000 from ALS. He stayed with us for the last couple of months of his life and he died at our home. While caring for him was emotional and difficult for all of us, it was something that we felt we were in a position to do and we both wanted to make him as comfortable as possible.

He was a non stop talker and the disease presented itself in his throat first, progressing fairly rapidly. At first he and his friends joked that he had "used up his life's allotment of talking." Ultimately it was very harsh for a person hell bent on communicating to lose speech and then the ability to type.

My heart goes out to you both, I know you have a lot more experience with this than most people, but I'm sure it doens't make it any easier.

10-07-2008, 11:55 AM	#12
footfootfoot To shreds, you say? Join Date: Aug 2004 Location: in the house and on the street-how many, many feet we meet! Posts: 18,449	BigV and Tink, I am sorry to hear that you are going through this. My wife's dad passed away in 2000 from ALS. He stayed with us for the last couple of months of his life and he died at our home. While caring for him was emotional and difficult for all of us, it was something that we felt we were in a position to do and we both wanted to make him as comfortable as possible. He was a non stop talker and the disease presented itself in his throat first, progressing fairly rapidly. At first he and his friends joked that he had "used up his life's allotment of talking." Ultimately it was very harsh for a person hell bent on communicating to lose speech and then the ability to type. My heart goes out to you both, I know you have a lot more experience with this than most people, but I'm sure it doens't make it any easier. __________________ The internet is a hateful stew of vomit you can never take completely seriously. - Her Fobs

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