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It's so frustrating how predictable our roller coaster is.
The GI doc said Minifob could go back on Entocort. Yay! Massive improvement across the board. Everyone is happy.
Minifob finished his 3 months of Entocort. Boo! Everyone is sad. Within just two days his teacher emailed me, asking for a conference about major behavioral shifts.
We are very close to considering anxiety meds. It's so frustrating because we know, without a doubt, that the symptoms are because of his gut. But the meds for his gut cause major long-term problems, and the doc won't let us stay on them. We're not even getting to put a bandaid on the symptoms at tier 1, we're having to do it up at tier 2.
Anyone here have any experience with Clonidine? We haven't had an appointment with the psych yet, but that's one of the frontrunners among my friends with kids on the spectrum.
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11-05-2013, 02:39 PM
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